Just when I resided to put the travel part of our lives on indefinite hold, I learned about Believe in Tomorrow from our hospital social worker. They make travel possible for families with a critically-ill child.
My life has changed dramatically since finding out that my four-year-old has leukemia. Time moves a little differently – every moment is a bit more premeditated. I’ve slowed down, opened my eyes noticeably wider, and backed away from moving at the speed of light. I try my best not to plan for more than just a day since I don’t know what to expect tomorrow. Travel status updates are less frequent – we keep most of our activities close to home. Our new medical status created a shift in behavior, especially as it pertains to planning trips. Any outings that are on my books were things that were there for months, pre-diagnosis – commitments I want to keep just to maintain a little bit of sanity. But I haven’t added anything new.
To say that our travel wings have been clipped is an understatement. We are a family that loves to be on the go. My husband and I are spontaneous and our kids enjoy going with the wind. As we go through this intense part of my son’s therapy, the “how do I travel with a child with cancer” question keeps popping up in my mind. It’s accompanied by when can we travel, where can we all go? So many uncertainties and very few definitives. What we do know is that we take things day by day and appreciate every 24 hours.
I appreciate every person in my life that helps make the journey a little easier. And I applaud every organization that works to bring extra joy and happiness to the life of a child battling cancer.
I spoke at length with Lindsay Brown, assistant to the COO at Believe in Tomorrow. She chatted with me about the hospital housing and respite housing program that BIT provides. Aside from the impact it could have on our life, I was curious about the impact the organization has on the lives of the other 300 families they work with.
The housing program first began in 1986 and has, over the years, provided over 560,000 individual overnight hospital and respite accommodations to families with critically ill children. Their hospital housing program provides a “home-away-from-home” to families worldwide who travel to John Hopkins hospital for a child’s medical treatment. They were the first to establish the concept of pediatric respite housing in the United States, providing families with a relaxing escape from the stressful routine of medical treatments. What a gift. Their houses by the water in Ocean City, MD and Fenwick, DE as well as their homes in the mountains of Western MD and North Carolina are designed to help families reconnect, create new memories, and provide a peaceful setting to help aid in the healing process.
I can identify with that.
Donating to a non-profit is a very personal decision for individuals. We’re all motivated by various reasons. What I like most about Believe in Tomorrow is that you know exactly how the money is being appropriated – 93% of every dollar directly supports their programs. If you’re interested in donating to the organization and making a difference in a child’s life, you can do so here. They’re answering the “where can I travel with my child” question for cancer families. A donation from you helps with the “how?”
Photos courtesy of Believe in Tomorrow.
Aisha G of HartlynKids says
This organization sounds amazing and like a great resource. I’m glad you found them
K Miller says
This organization sound amazing and you are blessed to have found it. Thanks for sharing more about it so we can pass it on to others.
worldtravelmom says
Aisha and Kala, I agree. It is a great organization doing good things for people right in our own backyards.
Wandering Educators says
What an amazing organization – times like these, we’re lucky to find such resources. Thinking of your family!
Corinne @ Have Baby Will Travel says
What a great organization. Thinking of you and your son. xo
worldtravelmom says
Thank you Corinne and Jessie. We’re pretty excited to be connected with them.
Dave @ AdventuresbyDaddy says
I just wanted to wish all the best for you and your son, and what an incredible resource you found. Here’s to many happy and healthy days ahead.
Colleen Lanin says
Anything I can think to say seems so inadequate. Thank you for sharing your story and for reminding me to slow down, for my kids and for me. Sending healing thoughts and love to your son and you.
Hilarye says
This has to be every mom’s worst fear. I can’t even begin to imagine what you are going through. So glad there are organizations and people out there who think these up. I hope to start one of my own one day. Love and prayers from us to you!
Terri @ Travel 50 States with Kids says
What a wonderful organization. And what a wonderful message about making the most of the time we have with our kids. I’m sorry that you are going through this, but happy that you took the time to remind the rest of us to make each moment count.
Mary {The World Is A Book} says
I’m sorry your family is going through this. What a great organization you found that will help out a lot of families. Sending you and your family best wishes and prayers. Thank you for the reminder to live each day and appreciate it and for letting us know about Believe In Tomorrow.